Fight for Sight, the main UK charity dedicated to funding pioneering eye research to prevent sight loss and treat eye disease, worked with key organisations across the sight loss and vision sector to produce a report outlining patients’ priorities for eye research. The report, the first of its kind, was launched at a reception at the House of Lords back in October to coincide with World Sight Day. Vision Direct is a proud partner of the charity.
Fight for Sight worked alongside other charities and organisations including; the College of Optometrists, NIHR Biomedical Research Centre for Ophthalmology, the Royal College of Ophthalmologists, RNIB, the UK Vision Strategy and Vision 2020 using a methodology tried and tested in other health sectors by the James Lind Alliance (JLA).
Forming the Sight Loss and Vision Priority Setting Partnership the group consulted patients, relatives, carers and eye health professionals to get an insight into what is most important to those with first-hand experience of sight loss to have addressed through research.
In May-July 2012 a survey was conducted asking people to identify unanswered questions about the prevention, diagnosis and treatment of sight loss and eye conditions that patients, carers and eye health professionals wished to see answered. An amazing 2,220 people responded to the survey generating 4,461 questions.
After further consultation concluding in workshops top ten lists for 12 different eye disease/condition categories were collated.
The information gathered by the Sight Loss and Vision prioritisation exercise will help ensure that future research programmes funded by charities and organisations across the UK can be targeted according to the prioritised needs of people living with sight loss, their relatives, carers and eye health professionals.
Michele Acton, Chief Executive of Fight for Sight said: “Medical research in the UK is largely reactive. With limited resources available, it is crucial that those closest to eye conditions get their say in prioritising medical research into the prevention, diagnosis and treatment of eye disease. For the first time, the Sight Loss and Vision Survey has allowed them to do just that.”
For further information or to review the report please visit here.