For the Henley family their 2010 Christmas was certainly a day that they would never forget.Their 18 month daughter, Matilda, had to spend Boxing Day at the local Accident &Emergency department.
In the lead up to this incident, Matilda was behaving completely out of character and would wake up screaming during the night which would continue for hours. These episodes were becoming a monthly occurrence.
Matilda was in excruciating pain and the family rushed her to their local hospital. Matilda’s mum Claire describes that Christmas as her worst ever, having to witness her child in so much pain and knowing that she couldn’t do anything to help.
It was confirmed that Matilda had a large scratch on her eye but her symptoms continued and she was referred to Great Ormond Street Hospital. It was here that a specialist diagnosed Matilda with corneal dystrophy, an inherited condition, which is currently incurable. They’re still unsure what form of the condition she has but they suspect it to be Meesmann’s, which is extremely rare.
It causes clusters of small cysts to develop across the surface of the eye, which make it
extremely sensitive to light, and cause blurred vision and the feeling that something is in the eye. In Matilda’s case the outermost layer of her cornea dries out causing the cysts to burst and expose delicate nerves.
Matilda, now aged four and half, continues to receive treatment to help manage her condition but has to wear sunglasses 80% of the time, come rain or shine, as her eyes are so sensitive.
Vision Direct is proud to support Fight for Sight who is currently supporting research into the condition and wants to share how you can donate a Christmas gift of £22.64 to help people just like Matilda.
Click here for further information on Fight for Sight’s Christmas appeal.